Updates
Our progress towards raising our 2m target
Today our little dufus of a dog turned 6 months old 😍 I never would have thought the introduction of this little loveable rogue into our lives could change things so much but he really has and only for the better. Yes we're still making up the juggle of the kids, work and now puppy care / his walks as we go along but it's all been worth it for every ounce of love and happiness that he brings ❤️
It helps that he's got a super sweet character to temper all the crazy energy he brings as believe it or not he also enjoys a quiet moment together. Today being a prime example of George being shattered after school and football with Murray there when he crashed out on the floor to keep him going 🥰
Chemo and all things cancer really are fading into the background thanks to the combination of time / distance from George's treatment as well as little Murray being such a positive distraction for all of us. Lookbacks still also help propel us forward with this day being the anniversary of starting George's 11th of 14 rounds of chemo 5 years ago now which in so many ways doesn't even seem possible.
We never know what path life is going to take us on but one thing's for sure, don't write things off as for us even having a dog just a year ago also didn't feel plausible and yet the life change he's brought us is truly quite remarkable.
Between us we've got this.
#thebigpush
#aimhighstaypositive
#giantpledge
Donate or join the Giant Pledge team with your own fundraising event in 2022 at https://giantpledge.com/team
Buy one of our 'Tackle Childhood Cancer' tees or pick up your superhero cape in honour of the doctors, nurses and super brave cancer kids at http://giantpledge.com/shop
Sing along & share our charity 'Do a Big Poo' song, https://youtu.be/U3iOmhIIc_s or buy it here, https://giantpledge.com/buy
Follow us on Facebook: https://www.facebook.com/georgeandthegiantpledge
On Twitter: https://twitter.com/giantpledge
And on Instagram: https://instagram.com/giantpledge
Or to help with any event you may be thinking of email Mari-Louise.White@rmh.nhs.uk and cc us at GeorgeandtheGiantPledge@gmail.com Alternatively write to us at The Giant Pledge, The Royal Marsden Hospital, Fundraising Room, Downs Rd, Sutton, SM2 5PT.
Accessibility Visual Description: Tonight's photo shows the kids about to do the school run and George heading off to football training this evening. There's also a photo of him shattered on the floor with Alex there and Murray on top of him. Finally there's a picture of George on this day in 2017 dragging his chemo infusion pole around with him. The last three photos are then of Murray from today. One of him looking super sweet and still so very puppy like, another of him running looking like a maniac and finally one of him sat looking so happy up at Woody during their walk earlier today.
It helps that he's got a super sweet character to temper all the crazy energy he brings as believe it or not he also enjoys a quiet moment together. Today being a prime example of George being shattered after school and football with Murray there when he crashed out on the floor to keep him going 🥰
Chemo and all things cancer really are fading into the background thanks to the combination of time / distance from George's treatment as well as little Murray being such a positive distraction for all of us. Lookbacks still also help propel us forward with this day being the anniversary of starting George's 11th of 14 rounds of chemo 5 years ago now which in so many ways doesn't even seem possible.
We never know what path life is going to take us on but one thing's for sure, don't write things off as for us even having a dog just a year ago also didn't feel plausible and yet the life change he's brought us is truly quite remarkable.
Between us we've got this.
#thebigpush
#aimhighstaypositive
#giantpledge
Donate or join the Giant Pledge team with your own fundraising event in 2022 at https://giantpledge.com/team
Buy one of our 'Tackle Childhood Cancer' tees or pick up your superhero cape in honour of the doctors, nurses and super brave cancer kids at http://giantpledge.com/shop
Sing along & share our charity 'Do a Big Poo' song, https://youtu.be/U3iOmhIIc_s or buy it here, https://giantpledge.com/buy
Follow us on Facebook: https://www.facebook.com/georgeandthegiantpledge
On Twitter: https://twitter.com/giantpledge
And on Instagram: https://instagram.com/giantpledge
Or to help with any event you may be thinking of email Mari-Louise.White@rmh.nhs.uk and cc us at GeorgeandtheGiantPledge@gmail.com Alternatively write to us at The Giant Pledge, The Royal Marsden Hospital, Fundraising Room, Downs Rd, Sutton, SM2 5PT.
Accessibility Visual Description: Tonight's photo shows the kids about to do the school run and George heading off to football training this evening. There's also a photo of him shattered on the floor with Alex there and Murray on top of him. Finally there's a picture of George on this day in 2017 dragging his chemo infusion pole around with him. The last three photos are then of Murray from today. One of him looking super sweet and still so very puppy like, another of him running looking like a maniac and finally one of him sat looking so happy up at Woody during their walk earlier today.
Thank you all so much for the love and sponsorship for Woody's TCS London Marathon efforts yesterday! (https://www.justgiving.com/fundraising/woodyslondonmarathon) I have to admit I'm still in awe, yes he runs a little each week but nothing like the kind of distances he prepped for in just six weeks! It makes me laugh that I'm the one snuggled on the sofa with a hot water bottle and a blanket tonight, whereas he went out to watch the football with friends down at the pub!
How he even managed to move today I'll never know! From lunging and stretching his legs in our local coffee shop when we stopped to grab this morning's pick me up, to walking Murray when we went to collect Alex, the man's a power house! Albeit taking Murray for a walk may have been a stretch too far even for him today as I'm not sure who was walking who and he did look a little like John Wayne! 😂
Yesterday's motivation comes in spades when we look back and think about everything George endured and our family's experiences following our then four-year-olds cancer diagnosis. It was on this day in 2017 we landed back from the States after we'd been sent there for Proton Therapy treatment by the NHS. Just seeing our friends welcome home party at the airport filled my heart this evening, that and the photo of my mum welcoming George back home at our house ❤️ It was also the first day he stepped foot in school in I don't know how long...the reason we made a mad dash there being that it was the day they were taking their annual school photographs.
Today was far more chilled with significantly less running around (no pun intended 😜) aside from the last minute panic shop to buy Alex's Food Tech ingredients for tomorrow but at least this time it wasn't five minutes before we left in the morning! All this also being far more in the realms of normal for so many other families so it's only right that we continue to try and help others to get them to this point...thanks again for helping us on this mission and sticking with us on this journey so many years down the line 🥰
Between us we've got this.
#thebigpush
#aimhighstaypositive
#giantpledge
Donate or join the Giant Pledge team with your own fundraising event in 2022 at https://giantpledge.com/team
Buy one of our 'Tackle Childhood Cancer' tees or pick up your superhero cape in honour of the doctors, nurses and super brave cancer kids at http://giantpledge.com/shop
Sing along & share our charity 'Do a Big Poo' song, https://youtu.be/U3iOmhIIc_s or buy it here, https://giantpledge.com/buy
Follow us on Facebook: https://www.facebook.com/georgeandthegiantpledge
On Twitter: https://twitter.com/giantpledge
And on Instagram: https://instagram.com/giantpledge
Or to help with any event you may be thinking of email Mari-Louise.White@rmh.nhs.uk and cc us at GeorgeandtheGiantPledge@gmail.com Alternatively write to us at The Giant Pledge, The Royal Marsden Hospital, Fundraising Room, Downs Rd, Sutton, SM2 5PT.
Accessibility Visual Description: Tonight's photo shows Woody stretching at Chalk Hills Bakery while getting our coffees in this morning, getting the boys ready for the school run and Murray taking Woody for a walk pulling him so much over the road it looks like Woody is water skiing! George can be seen going into school then beaming with a smile on his way out again this evening. These photos are next to two from this day in 2017. One at the school doors ahead of Alex and George having their sibling photo taken and another of a huge hug to welcome George home from my Mum. There's a pic of Woody, Alex and Murray walking back from school pick up, then one of Alex in the supermarket this evening grabbing some last minute ingredients. Finally there's a photo of our welcome home committee at the airport on this day in 2017.
How he even managed to move today I'll never know! From lunging and stretching his legs in our local coffee shop when we stopped to grab this morning's pick me up, to walking Murray when we went to collect Alex, the man's a power house! Albeit taking Murray for a walk may have been a stretch too far even for him today as I'm not sure who was walking who and he did look a little like John Wayne! 😂
Yesterday's motivation comes in spades when we look back and think about everything George endured and our family's experiences following our then four-year-olds cancer diagnosis. It was on this day in 2017 we landed back from the States after we'd been sent there for Proton Therapy treatment by the NHS. Just seeing our friends welcome home party at the airport filled my heart this evening, that and the photo of my mum welcoming George back home at our house ❤️ It was also the first day he stepped foot in school in I don't know how long...the reason we made a mad dash there being that it was the day they were taking their annual school photographs.
Today was far more chilled with significantly less running around (no pun intended 😜) aside from the last minute panic shop to buy Alex's Food Tech ingredients for tomorrow but at least this time it wasn't five minutes before we left in the morning! All this also being far more in the realms of normal for so many other families so it's only right that we continue to try and help others to get them to this point...thanks again for helping us on this mission and sticking with us on this journey so many years down the line 🥰
Between us we've got this.
#thebigpush
#aimhighstaypositive
#giantpledge
Donate or join the Giant Pledge team with your own fundraising event in 2022 at https://giantpledge.com/team
Buy one of our 'Tackle Childhood Cancer' tees or pick up your superhero cape in honour of the doctors, nurses and super brave cancer kids at http://giantpledge.com/shop
Sing along & share our charity 'Do a Big Poo' song, https://youtu.be/U3iOmhIIc_s or buy it here, https://giantpledge.com/buy
Follow us on Facebook: https://www.facebook.com/georgeandthegiantpledge
On Twitter: https://twitter.com/giantpledge
And on Instagram: https://instagram.com/giantpledge
Or to help with any event you may be thinking of email Mari-Louise.White@rmh.nhs.uk and cc us at GeorgeandtheGiantPledge@gmail.com Alternatively write to us at The Giant Pledge, The Royal Marsden Hospital, Fundraising Room, Downs Rd, Sutton, SM2 5PT.
Accessibility Visual Description: Tonight's photo shows Woody stretching at Chalk Hills Bakery while getting our coffees in this morning, getting the boys ready for the school run and Murray taking Woody for a walk pulling him so much over the road it looks like Woody is water skiing! George can be seen going into school then beaming with a smile on his way out again this evening. These photos are next to two from this day in 2017. One at the school doors ahead of Alex and George having their sibling photo taken and another of a huge hug to welcome George home from my Mum. There's a pic of Woody, Alex and Murray walking back from school pick up, then one of Alex in the supermarket this evening grabbing some last minute ingredients. Finally there's a photo of our welcome home committee at the airport on this day in 2017.
Today we watched in awe as Woody and thousands of other running heros took on the TCS London Marathon. I say watched, but we had a major fail seemingly unable to get a glimpse of Woody at every single place we went to catch him 😭 ... putting it bluntly he was just too fast for us 😳
At one point we heard someone shout, 'go Woody', but we couldn't see him for love nor money which was just gutting 😞 However, the pride in seeing him the other side of the finish line more than made up for it, especially as he managed to finish 5 minutes quicker than he did when he ran it last year despite only having 6 weeks training time this year ❤️
Note to self to try not spot him at so many meeting points, assuming he'll ever do it again that is #GluttonForPunishment 😵💫 Tonight's photos speak for themselves with smiles all round (and photos of the boys and I at multiple points across London 🤯)
Thanks again for all of your sponsorship and, as I said before, every penny means the world to us! 🥰 You can see just how much you helped him raise here, with time still to donate if you'd like to assuming you're able to, https://www.justgiving.com/fundraising/woodyslondonmarathon Now to rest and put our collective feet up. What a day! #LondonAtItsVeryBest
Between us we've got this.
#thebigpush
#aimhighstaypositive
#giantpledge
Donate or join the Giant Pledge team with your own fundraising event in 2022 at https://giantpledge.com/team
Buy one of our 'Tackle Childhood Cancer' tees or pick up your superhero cape in honour of the doctors, nurses and super brave cancer kids at http://giantpledge.com/shop
Sing along & share our charity 'Do a Big Poo' song, https://youtu.be/U3iOmhIIc_s or buy it here, https://giantpledge.com/buy
Follow us on Facebook: https://www.facebook.com/georgeandthegiantpledge
On Twitter: https://twitter.com/giantpledge
And on Instagram: https://instagram.com/giantpledge
Or to help with any event you may be thinking of email Mari-Louise.White@rmh.nhs.uk and cc us at GeorgeandtheGiantPledge@gmail.com Alternatively write to us at The Giant Pledge, The Royal Marsden Hospital, Fundraising Room, Downs Rd, Sutton, SM2 5PT.
Accessibility Visual Description: Tonight's photo shows Woody pre marathon in a selfie in the starting pen, then post race with his medal around his neck 😍 There's a selfie of all four of us, followed by photos galore of the day's event where we can be seen holding a Giant Pledge flag and all of us wearing our Giant Pledge capes. The boys and I can be seen at Tower Bridge, on the platform at Canary Wharf and heading down other various tube escalators. There's a photo of us walking towards the finish line with the boys holding hands, then greeting Woody and helping him walk home. George can be seen holding his medal next to Woody's official time for today which was 3.55 all in all.
At one point we heard someone shout, 'go Woody', but we couldn't see him for love nor money which was just gutting 😞 However, the pride in seeing him the other side of the finish line more than made up for it, especially as he managed to finish 5 minutes quicker than he did when he ran it last year despite only having 6 weeks training time this year ❤️
Note to self to try not spot him at so many meeting points, assuming he'll ever do it again that is #GluttonForPunishment 😵💫 Tonight's photos speak for themselves with smiles all round (and photos of the boys and I at multiple points across London 🤯)
Thanks again for all of your sponsorship and, as I said before, every penny means the world to us! 🥰 You can see just how much you helped him raise here, with time still to donate if you'd like to assuming you're able to, https://www.justgiving.com/fundraising/woodyslondonmarathon Now to rest and put our collective feet up. What a day! #LondonAtItsVeryBest
Between us we've got this.
#thebigpush
#aimhighstaypositive
#giantpledge
Donate or join the Giant Pledge team with your own fundraising event in 2022 at https://giantpledge.com/team
Buy one of our 'Tackle Childhood Cancer' tees or pick up your superhero cape in honour of the doctors, nurses and super brave cancer kids at http://giantpledge.com/shop
Sing along & share our charity 'Do a Big Poo' song, https://youtu.be/U3iOmhIIc_s or buy it here, https://giantpledge.com/buy
Follow us on Facebook: https://www.facebook.com/georgeandthegiantpledge
On Twitter: https://twitter.com/giantpledge
And on Instagram: https://instagram.com/giantpledge
Or to help with any event you may be thinking of email Mari-Louise.White@rmh.nhs.uk and cc us at GeorgeandtheGiantPledge@gmail.com Alternatively write to us at The Giant Pledge, The Royal Marsden Hospital, Fundraising Room, Downs Rd, Sutton, SM2 5PT.
Accessibility Visual Description: Tonight's photo shows Woody pre marathon in a selfie in the starting pen, then post race with his medal around his neck 😍 There's a selfie of all four of us, followed by photos galore of the day's event where we can be seen holding a Giant Pledge flag and all of us wearing our Giant Pledge capes. The boys and I can be seen at Tower Bridge, on the platform at Canary Wharf and heading down other various tube escalators. There's a photo of us walking towards the finish line with the boys holding hands, then greeting Woody and helping him walk home. George can be seen holding his medal next to Woody's official time for today which was 3.55 all in all.
Today Woody spent carb loading and doing his final preparations for the TCS London Marathon in the morning! It obviously would have been rude not to join him so we all sat down for a treat at Cullenders Parkside today once the boys had finished their Saturday sports this morning 🤤
Before this I'd already taken Murray for a walk choosing to wear my #RebelliousHope t-shirt for what would have been the birthday of our friend Debs, aka the infamous Bowelbabe. It sounds silly but it's a small yet sizable way to still acknowledge her by way of a clear statement none of us have forgotten her ❤️
Meanwhile we also squeezed in getting the boy's hair cut today. What their barber does with George's super fine hair since it grew back so thin after his cancer treatment to make it look so good I'll never know. But one thing's for sure we left with two very happy boys and their fresh cuts today 👌
So here's to Woody and his efforts tomorrow morning. Don't forget that if you've got the TCS London Marathon app you can also track him (his running number being 5207 as you can see here). And thanks once again for all of your sponsorship - it made our day today when it pushed over the £1,000 mark! I think for a marathon place you're supposed to raise over £2,000 but we're seriously proud of at least hitting that! Fundraising is never easy at the best of times, let alone when you've got to do all your training and fundraising in under six weeks, all in parallel with a cost of living crisis so MASSIVE thanks again for every single penny 🥰 (https://www.justgiving.com/fundraising/woodyslondonmarathon).
See you on the other side with as many toenails intact as possible!
Between us we've got this.
#thebigpush
#aimhighstaypositive
#giantpledge
Donate or join the Giant Pledge team with your own fundraising event in 2022 at https://giantpledge.com/team
Buy one of our 'Tackle Childhood Cancer' tees or pick up your superhero cape in honour of the doctors, nurses and super brave cancer kids at http://giantpledge.com/shop
Sing along & share our charity 'Do a Big Poo' song, https://youtu.be/U3iOmhIIc_s or buy it here, https://giantpledge.com/buy
Follow us on Facebook: https://www.facebook.com/georgeandthegiantpledge
On Twitter: https://twitter.com/giantpledge
And on Instagram: https://instagram.com/giantpledge
Or to help with any event you may be thinking of email Mari-Louise.White@rmh.nhs.uk and cc us at GeorgeandtheGiantPledge@gmail.com Alternatively write to us at The Giant Pledge, The Royal Marsden Hospital, Fundraising Room, Downs Rd, Sutton, SM2 5PT.
Accessibility Visual Description: Tonight's photo shows Woody and the boys tucking into a late lunch at Cullenders Parkside this afternoon. Woody's London Marathon items can then be seen laid out ready for tomorrow morning. There's a photo of me giving Murray a drink while walking him this morning as well as one of Alex and George in the park after both boys morning sport had finished, followed by another of all four of us. There's then three photos from this afternoon haircuts, including two before and one after shot. Finally there's a photo of Woody holding George up in front of the Hulk on this very day during George's year of cancer treatment. (At this point on the last stint of us in the USA at Universal Studios before we finally flew home in a few days).
Before this I'd already taken Murray for a walk choosing to wear my #RebelliousHope t-shirt for what would have been the birthday of our friend Debs, aka the infamous Bowelbabe. It sounds silly but it's a small yet sizable way to still acknowledge her by way of a clear statement none of us have forgotten her ❤️
Meanwhile we also squeezed in getting the boy's hair cut today. What their barber does with George's super fine hair since it grew back so thin after his cancer treatment to make it look so good I'll never know. But one thing's for sure we left with two very happy boys and their fresh cuts today 👌
So here's to Woody and his efforts tomorrow morning. Don't forget that if you've got the TCS London Marathon app you can also track him (his running number being 5207 as you can see here). And thanks once again for all of your sponsorship - it made our day today when it pushed over the £1,000 mark! I think for a marathon place you're supposed to raise over £2,000 but we're seriously proud of at least hitting that! Fundraising is never easy at the best of times, let alone when you've got to do all your training and fundraising in under six weeks, all in parallel with a cost of living crisis so MASSIVE thanks again for every single penny 🥰 (https://www.justgiving.com/fundraising/woodyslondonmarathon).
See you on the other side with as many toenails intact as possible!
Between us we've got this.
#thebigpush
#aimhighstaypositive
#giantpledge
Donate or join the Giant Pledge team with your own fundraising event in 2022 at https://giantpledge.com/team
Buy one of our 'Tackle Childhood Cancer' tees or pick up your superhero cape in honour of the doctors, nurses and super brave cancer kids at http://giantpledge.com/shop
Sing along & share our charity 'Do a Big Poo' song, https://youtu.be/U3iOmhIIc_s or buy it here, https://giantpledge.com/buy
Follow us on Facebook: https://www.facebook.com/georgeandthegiantpledge
On Twitter: https://twitter.com/giantpledge
And on Instagram: https://instagram.com/giantpledge
Or to help with any event you may be thinking of email Mari-Louise.White@rmh.nhs.uk and cc us at GeorgeandtheGiantPledge@gmail.com Alternatively write to us at The Giant Pledge, The Royal Marsden Hospital, Fundraising Room, Downs Rd, Sutton, SM2 5PT.
Accessibility Visual Description: Tonight's photo shows Woody and the boys tucking into a late lunch at Cullenders Parkside this afternoon. Woody's London Marathon items can then be seen laid out ready for tomorrow morning. There's a photo of me giving Murray a drink while walking him this morning as well as one of Alex and George in the park after both boys morning sport had finished, followed by another of all four of us. There's then three photos from this afternoon haircuts, including two before and one after shot. Finally there's a photo of Woody holding George up in front of the Hulk on this very day during George's year of cancer treatment. (At this point on the last stint of us in the USA at Universal Studios before we finally flew home in a few days).
Today Woody went up to collect his TCS London Marathon running number. He headed to Expo not long after lunch and said it felt somewhat smaller this year than when he's been in the past. There was still lots of fab charities and some seriously impressive installations, but more to the point, we now know his running number for Sunday is 5207 if you wanted to track / follow him!
Thanks again for all your sponsorship too, he's now not far off £1,000 which would be great if we could nudge him up to that milestone! (https://www.justgiving.com/fundraising/woodyslondonmarathon) With the date of the race having moved to October after all things covid it makes it even more pertinent as during September our Facebook newsfeeds flood with stories and cases of all sorts of childhood cancers and their families being that it's childhood cancer awareness month more than ever spurring us on.
Aside from that we also had a call with Alex's epilepsy consultant as well as a walk in the park first thing after dropping the kids off around working from home today. The tricky thing with epilepsy is there are cases that are just not as clear cut as you'd like them to be so it's hard to be decisive with a clear diagnosis either way 😞
That said, with Alex now having weaned off his meds it's a positive outcome that he's not had any prolonged absence seizures since then. We still question if he has the short 2-3 second absences but they were never really clear in the first place making it just as hard for us to be sure if they're happening now too (An EEG back at the start of all of this having picked up on these).
To that point, we agreed a 24 hour ambulaotory EEG would be a sensible thing to do. This is where they record the electrical signals of the brain over 24 hours meaning he'd go in to have all the wires set up, carry on with his day as usual (albeit probably wearing a hat), then go back to have them all removed then we wait for the results.
It all seems very logical plus there's little else we can do aside from watch and wait. We trust in his team but as parents can't help feel like we're failing him as we can tell something's not quite right, it's just difficult to pinpoint exactly what and how to help manage it. Either way, it's the weekend and I for one have a bucket load of sleep to catch up on.
Between us we've got this.
#thebigpush
#aimhighstaypositive
#giantpledge
Donate or join the Giant Pledge team with your own fundraising event in 2022 at https://giantpledge.com/team
Buy one of our 'Tackle Childhood Cancer' tees or pick up your superhero cape in honour of the doctors, nurses and super brave cancer kids at http://giantpledge.com/shop
Sing along & share our charity 'Do a Big Poo' song, https://youtu.be/U3iOmhIIc_s or buy it here, https://giantpledge.com/buy
Follow us on Facebook: https://www.facebook.com/georgeandthegiantpledge
On Twitter: https://twitter.com/giantpledge
And on Instagram: https://instagram.com/giantpledge
Or to help with any event you may be thinking of email Mari-Louise.White@rmh.nhs.uk and cc us at GeorgeandtheGiantPledge@gmail.com Alternatively write to us at The Giant Pledge, The Royal Marsden Hospital, Fundraising Room, Downs Rd, Sutton, SM2 5PT.
Accessibility Visual Description: Tonight's photo shows Woody at the London Marathon Expo today. At that point the TAG Heuer countdown clock said 42hours to go before race day. He can be seen holding his running number and one of our Giant Pledge capes, as well as there being a New Balance sign pictured saying, 'This is your Race'. Woody and I can be seen walking Murray having a coffee first thing with the sun beaming, plus there's a photo of the boys about to do the school run just before this. Add in a picture of us waiting for our video consultation regarding Alex's epilepsy, Woody's race number and a photo from this day during George's cancer treatment it ended up being quite a day.
Thanks again for all your sponsorship too, he's now not far off £1,000 which would be great if we could nudge him up to that milestone! (https://www.justgiving.com/fundraising/woodyslondonmarathon) With the date of the race having moved to October after all things covid it makes it even more pertinent as during September our Facebook newsfeeds flood with stories and cases of all sorts of childhood cancers and their families being that it's childhood cancer awareness month more than ever spurring us on.
Aside from that we also had a call with Alex's epilepsy consultant as well as a walk in the park first thing after dropping the kids off around working from home today. The tricky thing with epilepsy is there are cases that are just not as clear cut as you'd like them to be so it's hard to be decisive with a clear diagnosis either way 😞
That said, with Alex now having weaned off his meds it's a positive outcome that he's not had any prolonged absence seizures since then. We still question if he has the short 2-3 second absences but they were never really clear in the first place making it just as hard for us to be sure if they're happening now too (An EEG back at the start of all of this having picked up on these).
To that point, we agreed a 24 hour ambulaotory EEG would be a sensible thing to do. This is where they record the electrical signals of the brain over 24 hours meaning he'd go in to have all the wires set up, carry on with his day as usual (albeit probably wearing a hat), then go back to have them all removed then we wait for the results.
It all seems very logical plus there's little else we can do aside from watch and wait. We trust in his team but as parents can't help feel like we're failing him as we can tell something's not quite right, it's just difficult to pinpoint exactly what and how to help manage it. Either way, it's the weekend and I for one have a bucket load of sleep to catch up on.
Between us we've got this.
#thebigpush
#aimhighstaypositive
#giantpledge
Donate or join the Giant Pledge team with your own fundraising event in 2022 at https://giantpledge.com/team
Buy one of our 'Tackle Childhood Cancer' tees or pick up your superhero cape in honour of the doctors, nurses and super brave cancer kids at http://giantpledge.com/shop
Sing along & share our charity 'Do a Big Poo' song, https://youtu.be/U3iOmhIIc_s or buy it here, https://giantpledge.com/buy
Follow us on Facebook: https://www.facebook.com/georgeandthegiantpledge
On Twitter: https://twitter.com/giantpledge
And on Instagram: https://instagram.com/giantpledge
Or to help with any event you may be thinking of email Mari-Louise.White@rmh.nhs.uk and cc us at GeorgeandtheGiantPledge@gmail.com Alternatively write to us at The Giant Pledge, The Royal Marsden Hospital, Fundraising Room, Downs Rd, Sutton, SM2 5PT.
Accessibility Visual Description: Tonight's photo shows Woody at the London Marathon Expo today. At that point the TAG Heuer countdown clock said 42hours to go before race day. He can be seen holding his running number and one of our Giant Pledge capes, as well as there being a New Balance sign pictured saying, 'This is your Race'. Woody and I can be seen walking Murray having a coffee first thing with the sun beaming, plus there's a photo of the boys about to do the school run just before this. Add in a picture of us waiting for our video consultation regarding Alex's epilepsy, Woody's race number and a photo from this day during George's cancer treatment it ended up being quite a day.
Woody went for his final run before taking part in the TCS London Marathon on Sunday! Is it wrong to say I'm worried about finding him and keeping up on the day as that's a job in itself if you've ever supported anyone with any sort of speed about them! (I was so slow they had plenty of time to catch me up and then overtake me 😂) Thanks again to any of you that have already sponsored him, it means so much to all of us ❤️ If you're able to donate anything at all every single penny helps as it all adds up so I'll leave his fundraising link here for you just in case you wanted to, https://www.justgiving.com/fundraising/woodyslondonmarathon
Today was a busy day, so much so I was working intently on the train on the way home and completely missed my stop ending up a London Gatwick - what an idiot 🤦🏼♀️ Tonight Woody and I then went to Guardians of the Galaxy Secret Cinema evening up in London, but at least Woody drove this time limiting things that could do wrong as I was so distracted!
It was so much fun even if dressing up was a bit of a challenge as I hadn't prepared anything and had less than 10 mins to rustle up an outfit and get ready! I had to laugh as I looked like I channeled more of a Lara Croft look vs a ravager which is what I should have done, plus I ended up wearing a six year olds jacket (The hoarder in me was soooo pleased with herself! 😍)
Yes it may have nearly cut off my blood circulation, and yes I had to peel it off when we got home just before midnight this evening, but it at least had a look of Peter Quill about it even if I pretended I'd rolled up the sleeves but in fact they barely reached my wrists by any stretch 😜 A fun night none the less!
Between us we've got this.
#thebigpush
#aimhighstaypositive
#giantpledge
Donate or join the Giant Pledge team with your own fundraising event in 2022 at https://giantpledge.com/team
Buy one of our 'Tackle Childhood Cancer' tees or pick up your superhero cape in honour of the doctors, nurses and super brave cancer kids at http://giantpledge.com/shop
Sing along & share our charity 'Do a Big Poo' song, https://youtu.be/U3iOmhIIc_s or buy it here, https://giantpledge.com/buy
Follow us on Facebook: https://www.facebook.com/georgeandthegiantpledge
On Twitter: https://twitter.com/giantpledge
And on Instagram: https://instagram.com/giantpledge
Or to help with any event you may be thinking of email Mari-Louise.White@rmh.nhs.uk and cc us at GeorgeandtheGiantPledge@gmail.com Alternatively write to us at The Giant Pledge, The Royal Marsden Hospital, Fundraising Room, Downs Rd, Sutton, SM2 5PT.
Accessibility Visual Description: Tonight's photo shows the boys about to do the school run, Woody can then be seen doing his very last marathon training run. There's then a photo I took as I looked out the window coming into London Gatwick later this afternoon ::: You can see a banner for the Secret Cinema event this evening and one of the directional posters held up to get us all there from the central London meeting point. Woody and I are having a selfie in front of the spray painted poster for this evening, there's a picture of my lap with an old school cassette we took for 'trades' this evening and finally a picture of the two of us in the main themed food hall tonight as for the first time ever they gave us our phone back before the movie but after the live interactive performance.
Today was a busy day, so much so I was working intently on the train on the way home and completely missed my stop ending up a London Gatwick - what an idiot 🤦🏼♀️ Tonight Woody and I then went to Guardians of the Galaxy Secret Cinema evening up in London, but at least Woody drove this time limiting things that could do wrong as I was so distracted!
It was so much fun even if dressing up was a bit of a challenge as I hadn't prepared anything and had less than 10 mins to rustle up an outfit and get ready! I had to laugh as I looked like I channeled more of a Lara Croft look vs a ravager which is what I should have done, plus I ended up wearing a six year olds jacket (The hoarder in me was soooo pleased with herself! 😍)
Yes it may have nearly cut off my blood circulation, and yes I had to peel it off when we got home just before midnight this evening, but it at least had a look of Peter Quill about it even if I pretended I'd rolled up the sleeves but in fact they barely reached my wrists by any stretch 😜 A fun night none the less!
Between us we've got this.
#thebigpush
#aimhighstaypositive
#giantpledge
Donate or join the Giant Pledge team with your own fundraising event in 2022 at https://giantpledge.com/team
Buy one of our 'Tackle Childhood Cancer' tees or pick up your superhero cape in honour of the doctors, nurses and super brave cancer kids at http://giantpledge.com/shop
Sing along & share our charity 'Do a Big Poo' song, https://youtu.be/U3iOmhIIc_s or buy it here, https://giantpledge.com/buy
Follow us on Facebook: https://www.facebook.com/georgeandthegiantpledge
On Twitter: https://twitter.com/giantpledge
And on Instagram: https://instagram.com/giantpledge
Or to help with any event you may be thinking of email Mari-Louise.White@rmh.nhs.uk and cc us at GeorgeandtheGiantPledge@gmail.com Alternatively write to us at The Giant Pledge, The Royal Marsden Hospital, Fundraising Room, Downs Rd, Sutton, SM2 5PT.
Accessibility Visual Description: Tonight's photo shows the boys about to do the school run, Woody can then be seen doing his very last marathon training run. There's then a photo I took as I looked out the window coming into London Gatwick later this afternoon ::: You can see a banner for the Secret Cinema event this evening and one of the directional posters held up to get us all there from the central London meeting point. Woody and I are having a selfie in front of the spray painted poster for this evening, there's a picture of my lap with an old school cassette we took for 'trades' this evening and finally a picture of the two of us in the main themed food hall tonight as for the first time ever they gave us our phone back before the movie but after the live interactive performance.
